Helping Children and Adolescents with Chronic and Serious Medical Conditions

An important and practical guide to providing compassionate care and support to medically compromised children and their families Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach presents practical guidance on integrating the latest research into evidence-based practice to ensure the best client care. Edited by a top scholar in the field, this essential resource contains contributions from renowned specialists in various helping fields. Utilizing an inter-professional perspective, helping professionals will draw from the experiences and expertise of a wide range of medical professionals, providing a "window" into their roles, responsibilities, and challenges, offering the most effective approaches for working with this special population of children and their families. Equipping practitioners with the knowledge and skills needed to encourage children's resilience and help them build their emotional strengths, this book uses a caring yet authoritative tone and discusses: The emotional impact of illness on the individual and the family Child-life practice in hospitals School-based interventions for children and adolescents with medical conditions How to meet the spiritual as well as emotional needs of children with chronic and life-threatening illness With thoughtful coverage of positive helping approaches that encourage family and individual strengths, Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach is an invaluable resource for social workers, teachers, school counselors, and other mental health and medical professionals who work with medically challenged children and adolescents in every setting.

Foreword, Barbara Sourkes, PhD xi Preface xv Acknowledgments xix Part I Overview and Introduction: Theoretical Framework for Collaborative Practice 1 Chapter 1 When a Young Person’s Health Becomes Problematic 3 Nancy Boyd Webb and Rose A. Bartone Chapter 2 The Emotional Impact of a Young Person’s Illness on the Family 21 Cindy Dell Clark Chapter 3 The Economic, Social, and Cultural Context of Health Care 35 Virginia Rondero Hernandez Part II Helping Approaches of Practitioners in Different Settings 57 Chapter 4 A Behavioral Pediatrician’s Perspective on Helping Children Recover from Traumatic Medical Experiences 59 Joan Lovett Chapter 5 Child Life Practice in Hospitals 73 Deborah Vilas Chapter 6 Working with Families of Medically Challenged Youth 89 Jennifer Baggerly Chapter 7 School-Based Interventions for Children and Youth with Medical Conditions 105 Suzanne C. Griffith and Rosemary Doyle Chapter 8 School Social Work Interventions for Medically Compromised Youth and Families 121 Linda Openshaw Chapter 9 Strengths-Based Group Work with Children 137 Ariel Allena Botta Chapter 10 Play and Expressive Therapies with Medically Challenged Children and Adolescents 155 Nancy Boyd Webb Chapter 11 Meeting the Spiritual Needs of Children with Chronic and Life-Threatening Illness 171 Paul Thayer Part III Challenges and Issues Associated with Chronic, Ongoing, or Recurring Physical Conditions and Disabilities 187 Chapter 12 Medical Conditions Present at Birth 189 Patrick Shannon Chapter 13 Medical Conditions That Appear During Early Childhood 205 Roxia B. Bullock Chapter 14 Other Conditions That May Occur in Childhood or Develop in Adolescence 225 M. Carlean Gilbert Part IV Acute Health Crises 241 Chapter 15 Outpatient Counseling for Children and Youth with Life-Threatening Conditions 243 Douglas Davies and Nancy Boyd Webb Chapter 16 Hospital Treatment of Children and Youth with Life-Threatening Conditions 269 Elaine C. Meyer Chapter 17 Helping in the Emergency Room after Accidents and Traumatic Injury 285 Leslie H. Wind Part V Challenges and Guidelines for Helping 303 Chapter 18 The Challenge of Maintaining Hope and Fostering Resiliency: Implications for Youth, Families, and Practitioners 305 Nancy Boyd Webb Appendix Child-, Youth-, and Family-Health-Related Professional Organizations 317 Training Programs and Certificates Related to Helping Medically Challenged Youth and Families 321 Child-, Youth-, and Family-Health-Related Professional Journals 324 Additional Health-Related Resources for Youth and Families 330 About the Editor 335 About the Contributors 337 Author Index 341 Subject Index 351