User Involvement in Health Care

How can the needs and perspective of patients be incorporated in the design and redesign of health services? Health organizations are focusing more and more on patients – and requiring their employees to practise patient focused care. The Modernisation Initiative described in this book explores in three health service areas (kidney, stroke and sexual health services) how patients' and carers' involvement may inform and shape quality improvement work This book guides you through the issues and challenges that teams seeking to involve users in changing health services are likely to face. It offers a wealth of practical knowledge about involving users. Those undertaking similar programmes, whether in primary care or hospital based, will find ideas and examples in this book to inspire and guide them.

Contributors vi Foreword viii Acknowledgements xii Chapter 1 User involvement – a story of our time 1 Trisha Greenhalgh, Charlotte Humphrey & Fran Woodard Chapter 2 What is already known about involving users in service transformation? 10 Ceri Butler & Trisha Greenhalgh Chapter 3 Experience-based co-design  28 Vikki Pearce, Paula Baraitser, Gaynor Smith & Trisha Greenhalgh Chapter 4 Patients as teachers and mentors 52 Gaynor Smith Jane Hughes & Trisha Greenhalgh Chapter 5 Co-producing information 64 Jane Hughes, Gaynor Smith & Trisha Greenhalgh Chapter 6 Involving users in leadership and governance 81 Fran Woodard, Lizzy Bovill & David Freedman Chapter 7 Inherent tensions in involving users 104 Trisha Greenhalgh, Fran Woodard & Charlotte Humphrey Chapter 8 Where next for user involvement? 116 Trisha Greenhalgh, Fran Woodard & Charlotte Humphrey Index 127