Patient and Public Involvement Toolkit

Providing information to implement a new core healthcare requirement – patient involvement Including real case scenarios to illustrate the principles of effective PPI Following the unique Toolkit series format of flowcharts and layouts that guide the reader through each section

Foreword vii Chapter 1 Introduction 1 The toolkit series 1 Aim of this toolkit 1 Why have a PPI toolkit? 2 The language of PPI 2 Getting started 2 Levels of PPI 4 Chapter 2 What is patient and public involvement? 15 Why bother with PPI? 15 Why is PPI growing in health and social care? 16 Changes in PPI legislation 17 How does PPI help organizations and services and care change? 18 Improving health services 18 Improving health research 19 Global networks 21 Monitoring of health services 23 Developing health organizations 24 Developing an organizational strategy for PPI 26 Define structures within your organization 27 Define structures outside your organization 27 Four ways to develop PPI 28 Chapter 3 How to conduct effective PPI 36 Searching for literature about involvement 37 Searching the grey literature for PPI publications 38 PPI search terms 38 Searching and citing issues in PPI 38 Involving the right people 39 PPI methods and tools 42 Reviewing documents 46 Designing a questionnaire for a survey 46 Running a focus or discussion group 47 Running a workshop 49 Practical considerations 53 An icebreaker: tree types 55 Exhibitions and road shows 57 Interviews 58 Chapter 4 Building relationships 60 Recruitment and networking 60 Methods for recruitment 60 Support and training for participants and professionals 62 Interpersonal skills: running effective meetings and workshops 63 Role of chairperson or facilitator 63 Dealing with difficult situations and managing conflict 65 Being inclusive 67 Avoiding the pitfalls 71 Online communication in PPI 72 Communicating in advance 75 Chapter 5 Evaluation of PPI 78 Evaluating PPI methods and process 79 Evaluating the impact of PPI on a service or project 80 Evaluating the impact of PPI on the people who took part 81 Chapter 6 The future of PPI 85 Allocation of resources and better use of resources 86 Accessibility of services 88 Health professionals working with patients and the public 89 Developing trust and credibility between the public and health organizations 89 Improving quality of care and reducing harm 90 Final thoughts 92 Conclusions 92 Index 95